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Many people, he added, are reluctant to tell doctors they use the drug or that they are dependent on it. CHS remains “way underrecognized” by doctors, he said, and is a diagnosis of exclusion typically made after other conditions have been ruled out.

“CHS is a very frustrating and alienating condition to have,” Danovitch added. “It often takes people a long time to be diagnosed and there’s a lot of suffering along the way.”

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